At just 7 years old, Nebraska native Lukas Caldwell was diagnosed with Parry-Romberg syndrome, a rare condition that causes facial tissue loss. What started as a small mark turned into years of tests and tough questions.
Growing up, Lukas endured stares and cruel remarks, but his twin brother and family helped him stay strong. By high school, he began sharing his story on TikTok — and one viral video grew into nearly 3 million followers.
Now 21, Lukas uses his platform to spread awareness, encourage kindness, and remind people to embrace differences. His message is simple: never judge someone by their appearance.
